Thursday, December 27, 2018

Understanding Narcolepsy and Cataplexy

"They will never completely get it, none of them.  It is just too completely distant from anything they know."

I'll just have to accept it.

Wednesday, November 28, 2018

Photosensitivity and retinoblastoma

https://wechope.org/research/sleep-photosensitivity-and-retinoblastoma/

Science of sleep

https://www.nationalgeographic.com/magazine/2018/08/science-of-sleep/

Friday, August 3, 2018

NC as bad as MS

Narcolepsy is uncommon and misunderstood. Most people know 

what Cystic Fibrosis is even though CF is less common than 

narcolepsy. Most people understand how debilitating Multiple

 Sclerosis yet most people don't understand that narcolepsy is just 

as debilitating a disability as MS and just as common. The general 

public values narcolepsy more as a punch line than as a real and

rare disease. Inaccurate fictional comedic depictions of narcolepsy

in the media have led most people to mistakenly believe that 

narcoleptics are people who suddenly fall asleep mid sentence 

while remaining standing and then awaken suddenly and are 

clueless as to what just happened. Newly diagnosed adults 

narcoleptics often find their struggles are more likely to be viewed 

as anxious plagiarisms of "real" biological disorders than to be 

viewed as challenging problems caused by a serious chronic 

disease.


Wednesday, February 21, 2018

Sleep Disorders

Narcolepsy is uncommon and misunderstood.

Narcolepsy is uncommon and misunderstood. Most people know what Cystic Fibrosis is even though CF is less common than narcolepsy. Most people understand how debilitating Multiple Sclerosis yet most people don't understand that narcolepsy is just as debilitating a disability as MS and just as common. The general public values narcolepsy more as a punch line than as a real and rare disease. Inaccurate fictional comedic depictions of narcolepsy in the media have led most people to mistakenly believe that narcoleptics are people who suddenly fall asleep mid sentence while remaining standing and then awaken suddenly and are clueless as to what just happened. Newly diagnosed adults narcoleptics often find their struggles are more likely to be viewed as anxious plagiarisms of "real" biological disorders than to be viewed as challenging problems caused by a serious chronic disease.